 Diagnostic
Criteria
Rosner Rebuttal
Central Nervous System
 Compare Symptoms
Chiari I Malformation
Cervical Spinal Stenosis
Low Blood Pressure
MRI Requirements
Patient Testimonials
Dr. Heffez Information
Introduction to NFRA
NFRA Symposiums
Subgroups in FM
New Dimensions in FM
Other Abstracts
Awareness Pin
Gifts and Memorials
Calendar of Events
Resources & Web Links
Patient Organizations
www.fmaware.org
www.fmpartnership.org
|
Resources
|
Books
and Publications
|
Making
Sense of Fibromyalgia
| Authors:
|
Daniel
Wallace, MD and Janice Brock |
| Publisher:
|
Oxford
University Press |
|
|
198
Madison Avenue |
|
|
New
York, NY 10016-6314 |
| Price:
|
$25.00
- Available at bookstores |
| Comments:
|
Noted
medical writer Janice Brock and Dr. Daniel J. Wallace,
a leading expert on this disorder, provide a comprehensive
guide, for both patients and professionals, to this little
known and poorly understood syndrome. |
|
|
Multi-Disciplinary
Approaches to Fibromyalgia
| Publisher:
|
Anadem
Publishing, Inc. |
|
|
3620
North High Street |
|
|
Columbus,
OH 43214 |
| Fax:
|
614-262-6630
|
| Web
Site: |
www.anadem.com
|
| Price:
|
$25.00
+ $3.50 shipping and handling, VISA and MasterCard accepted
|
| Comments:
|
A
synopsis of materials presented at the first ever New
York Fibromyalgia Conference. A potpourri of information
on FM, both from professionals who spoke at the May '98
FM conference in New York and other FM people who agreed
to contribute. |
|
|
The
Fibromyalgia Help Book
| Authors:
|
Jenny
Fransen, RN and I. Jon Russell, MD |
| Publisher:
|
Smith
House Press |
| Order
From: |
Fransen
& Associates |
|
|
1729
Lois Drive |
|
|
Shoreview,
MN 55126 |
| Comments:
|
Easy
to read and understand, conveys state-of-the-art information
concerning FMS that will be helpful to patients as well
as health care providers. |
| Price:
|
$18.95
+ $4.00 shipping and handling |
|
|
The
Fibromyalgia Survivor (and other publications)
| Author:
|
Mark
Pellegrino, MD, a fibromyalgia survivor |
| Publisher:
|
Anadem
Publishing Co |
|
|
3620
N High Street |
|
|
Columbus,
OH 43214 |
| Telephone:
|
800-633-0055
|
| Price:
|
$23.00
(price includes shipping) |
|
|
Fibromyalgia
Syndrome and Chronic Fatigue Syndrome in Young People
| Author:
|
Kristin
Thorson |
| Publisher:
|
Health
Information Network, Inc |
| Orders:
|
Fibromyalgia
Network |
|
|
PO
Box 31750 |
|
|
Tucson,
AZ 85751-1750 |
| Comments:
|
A
guide for parents. |
| Price:
|
$10.00
|
|
|
|
Videos
|
Fibromyalgia
Exercise Videos
| Order:
|
Oregon
Fibromyalgia Foundation |
|
|
1221
S.W. Yamhill, Suite 303 |
|
|
Portland,
OR 97205 |
| Comments:
|
Three
different videos offer comprehensive Stretching; Toning
and Strengthening; and Aerobic regimens. These videos
are produced by exercise physiologist Sharon Clark, PhD,
FNP, specifically for people with FMS. Fibromyalgia patients
are shown demonstrating these unique stretching, strengthening
& toning and aerobic and toning programs. |
| Price:
|
$30
for one tape; $55 for 2 tapes; $75 for all three tapes.
(Shipping and handling included in the prices.)
Call (503) 228-3217 |
|
|
|
Newsletters
|
Fibromyalgia
Frontiers
| Order:
|
Fibromyalgia
Frontiers |
|
|
140
Zinn Way |
|
|
Linden,
VA 22642-5609 |
| Telephone:
|
Toll
Free: 866-725-4404 |
| Comments:
|
A
quarterly publication of the National Fibromyalgia Partnership.
This newsletter shares information regarding FMS research
advances, treatment ideas, conventions, and resources.
Also, check out NFP's website for online publications
including information on Emergency Services, The Americans
With Disability Act, and Social Security Disability. A
Spanish FM monograph is also available on their site.
www.fmpartnership.org
|
| Price:
|
$25.00
annual membership and $12 annually for students. |
|
|
FM
Aware
| Order:
|
National
Fibromyalgia Association |
|
|
2200N.
Glassell Street, Suite A |
|
|
Orange,
CA 92865 |
| Telephone:
|
714-921-0150
|
| Comments:
|
A
bimonthly virtual newsletter on the web at www.fmaware.org
|
|
Price:
|
Free!
|
|
|
Fibromyalgia Aware
Magazine
| Order:
|
National
Fibromyalgia Association |
|
|
2200
N. Glassell Street, Suite A |
|
|
Orange,
CA 92865 |
| Telephone:
|
714-921-0150
|
| Comments:
|
Fibromyalgia Aware is printed three times annually and
each issue is filled with essential information related
to FM and overlapping conditions. Also included
in each printing is a tear out supplement especially
formatted to help educate health care professionals
regarding the newest findings in FM research and treatment. |
|
Price:
|
An annual magazine subscription is presented as a gift
from the NFA with a tax-deductible donation of $35 or
more. |
|
|
The CFIDS Chronicle
| Order:
|
The
CFIDS Association of America, Inc. |
|
|
PO
Box 220398 |
|
|
Charlotte,
NC 28222-0398 |
| Telephone:
|
800-442-3437
|
| Comments:
|
A
quarterly publication aimed at reporting the most current
CFIDS/FMS research information. Other publications available
as well as information about the association and member
benefits. |
| Price:
|
$35
annual membership |
|
|
To
Your Health and Healthpoints
| Order:
|
To
Your Health |
|
|
17007
East Colony Drive, Suite 105 |
|
|
Fountain
Hills, AZ 85268 |
| Telephone:
|
800-801-1406
|
| Comments:
|
A
resource catalogue and newsletter for FMS, CFIDS, arthritis,
and chronic pain. Features vitamins and health products
developed specifically for FMS and CFIDS making hard-to-find,
recommended nutritional supplements available to Fibromyalgia
and Chronic Fatigue Syndrome sufferers at a manufacturer-direct
low price. The professional newsletter caries articles
by health care professional as well as personal stories
of FM sufferers. |
| Price:
|
Healthpoints
Newsletter - $20.00 annual subscription (First subscription
free with purchase of products.) Healthy Savings
Catalogue - Free |
|
|
Healthwatch
|
|
CFIDS
and Fibromyalgia Health Resource |
|
|
A
patient owned organization |
| Telephone:
|
800-366-6056
|
| Web
Site: |
www.immunesupport.com/afme
|
| Comments:
|
Healthwatch
serves Fibromyalgia and Chronic Fatigue Syndrome sufferers
by focusing on three primary objectives: 1) reporting
the latest news in Fibromyalgia and Chronic Fatigue Syndrome
research and treatment; 2) making hard-to-find, recommended
nutritional supplements available to Fibromyalgia and
Chronic Fatigue Syndrome sufferers at a manufacturer-direct
low prices, and, most importantly; 3) raising much needed
funds for Fibromyalgia and Chronic Fatigue Syndrome medical
research. |
| Price:
|
Free
|
|
|
|
Professional
Medical Journals and Magazines
|
Journal
of Musculoskeletal Pain
| Publisher:
|
Haworth
Medical Press |
|
|
10
Alice Street |
|
|
Binghamton,
NY 13904 |
| Telephone:
|
800-342-9678
|
| Comments:
|
A
peer reviewed medical journal containing FMS scientific
abstract information. Appropriate for medical professionals
as well as amateur. A quarterly publication. |
| Price:
|
$36.00
annual subscription |
|
|
Journal
of the Chronic Fatigue Syndrome
| Publisher:
|
Haworth
Medical Press |
|
|
10
Alice Street |
|
|
Binghamton,
NY 13904 |
| Telephone:
|
800-342-9678
|
| Comments:
|
A
peer reviewed medical journal containing CFIDS scientific
abstract information. Appropriate for patients as well
as medical professionals. A quarterly publication. |
| Price:
|
$36.00
annual subscription |
|
|
|
Medical Professional Contacts
|
Neurosurgeon
 |
Dan Heffez, MD
|
Address: |
St.
Joseph Hospital
12th
Floor
2900
N. Lakeshore Drive
|
|
|
Chicago,
IL 60657 |
| Telephone:
|
(773)
281-4402 |
| Website:
|
www.heffezneurosurgical.com
|
|
|
|
|
Media
|
|
Organizations
|
National
Fibromyalgia Association
| Address:
|
2200
N. Glassell Street, Suite A |
|
|
Orange,
CA 92865 |
| Telephone:
|
714-921-0150
|
| Fax:
|
714-921-8139
|
| E-Mail:
|
nfac1@aol.com
|
| Web
Site: |
www.fmaware.org
|
| Comments:
|
Improving
the quality of life for people with Fibromyalgia by increasing
awareness. |
|
|
National
Fibromyalgia Partnership, Inc. (NFP)
| Address:
|
140
Zinn Way |
|
|
Linden,
VA 22642-5609 |
| Telephone:
|
866-725-4404
Toll Free |
| Fax:
|
540-622-2298
|
| Web
Site: |
www.fmpartnership.org
|
|
|
Fibromyalgia
Resources
|
E-mail |
fibrobetsy@rcn.com
|
|
Comments: |
This
is a specialized patient resource service, which searches
for and constantly updates lists of patient recommended,
fibro-friendly doctors to share with people looking for
competent, caring, FM treating physicians. |
|
|
National
Institute of Arthritis, Musculoskeletal, and Skin Diseases
|
Address: |
PO
Box AMS |
| |
9000
Rockville Pike |
| |
Bethesda,
MD 20892 |
|
Comments: |
Free
packet of fibromyalgia information distributed by the
National Institute of Arthritis Musculoskeletal and
Skin Diseases containing lists of fibromyalgia organizations,
a glossary, the American College of Rheumatology's Fact
Sheet, and several FMS articles written by experts.
|
|
|
International
MyoPain Society
| Telephone:
|
210-567-4661
(USA) |
| Fax:
|
210-567-6669
(USA) |
| E-Mail:
|
|
| Web
Site: |
www.myopain.org
|
|
|
CFIDS
Association of America, Inc.
| Address:
|
PO
Box 220398 |
|
|
Charlotte,
NC 28222-0398 |
| Telephone:
|
800-848-7373
|
| Web
Site: |
www.cfids.org
|
| Comments:
|
Provides
information, advocacy, research information and encouragement
for the CFIDS community. Also provides data on treatment,
support groups and conferences. |
|
|
|
Other Web Sites and E-Mail Addresses
|
Dan Heffez, MD
|
|
World Arnold Chiari Malformation Association
|
|
American Syringomyelia Alliance Project, Inc.
|
|
Orthospine (spinal stenosis)
|
|
National Dysautonomia Research Foundation
|
|
FM Resources - Betsy Jacobson
| Comment:
|
This
is a specialized patient resource service, which searches
for and constantly updates lists of patient recommended,
fibro-friendly doctors to share with people looking for
competent, caring, FM treating physicians. |
| E-Mail:
|
fibrobetsy@rcn.com
|
|
|
Scott M. Riemer
|
National Fibromyalgia Research Association
PO Box 500, Salem, OR 97302
|
|
